Folia Health Launches 'BRAVE-PWS" Study to Better Understand the Real-World Experience of Prader-Willi Syndrome Caregivers
Source: The Manila times
Published on: 2026-04-15 12:16
BOSTON, April 15, 2026 (GLOBE NEWSWIRE) -- Folia Health announces the launch of Burden and Real-world Assessment of Caregiver Voice and Experiences in Prader-Willi syndrome (BRAVE-PWS), a fully remote observational study, sponsored by Soleno Therapeutics (NASDAQ: SLNO), designed to better understand the real-world experience of caregivers supporting individuals with Prader-Willi syndrome (PWS). The study will use Folia's app-based platform to collect Home-Reported Outcomes (HROs) and longitudinal caregiver-reported data over six months, helping researchers characterize the day-to-day experience associated with PWS and identify the factors that most affect caregiver well-being and household functioning. "Pragmatic measurement is an important key to drug development that can provide insight into the needs of individuals living with rare diseases, such as PWS. PWS impacts the entire family...
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